International

Chilean mother travels 1,300 kilometers on foot to try to save her son with dystrophy

In the city of Ancud, one of the most important of the Chiloe archipelago, in the south of Chile, there is no hospital, so if one of its about 165,000 inhabitants gets sick, he must take the ferry and travel about 50 kilometers to reach the neighboring city of Puerto Montt, the nearest place.

Camila Gómez, a young mother, decided to take a trip but this time to walk to the Palacio de la Moneda, in Santiago de Chile, more than 1,300 kilometers from her home, to raise funds and make visible the drama of her son Tomás, who suffers from Duchenne muscular dystrophy, one of the so-called “rare diseases”, which almost no one worries and no one finances.

Its main objective is to help collect the nearly four million dollars that costs a vital treatment that does not exist in Chile – it must be imported from the United States – and that would help stop the progression of the child’s ailment, barely five years old.

“Tomás has Duchenne muscular dystrophy in a neuromuscular degenerative disease that gradually weakens the muscles, the respiratory system and the heart, which leads to premature death,” he explains in one of the highs of his journey.

“In Chile there is no type of treatment for this disease, but in the United States there are several treatment options, there are three and here they told me that it was not possible to cover a medicine that is abroad. And it motivated me to do this walk, this physical effort,” he adds.

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Gómez regrets that no one, neither the precarious public service nor the greedy private insurance, has offered him an exit in the country, although his son “does have options abroad.

“That’s why we decided to walk, to make the disease visible and take it very particularly to collect the 3.9 million dollars that the drug that is administered for the only time in a lifetime costs. So far (its administration) is approved until the age of four and five. Tomás is five and a half years old. So we are against time,” she urges in anguish.

Even so, hope has not been erased from his face and sometimes, especially when asked about solidarity, he outlines a smile of love and trust.

“We are all aware of the great health deficit, that Chile is a country very backward in health, unlike other more developed countries and we are all aware of that. So people have empathized, supported and contributed to the campaign,” he says.

Along with this mother, who left Ancud on April 28, her husband and father of Tomás, Alex Ross, a friend Álvaro Neira and Marco Reyes, president of the Duchenne Families corporation in Chile, who has two teenage children with the same disease and who proposed the Ross Gómez family to the odyssey.

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“I am the logistical support for Camila and Marco who have been walking from Chiloé. I assist them on the way, usually with a change of clothes, food, food, I manage the lodging,” explains Alex.

“(Camila) Walk through Tomás, because we are against time, but he also does it so that no mom has to do it,” he says.

Camila’s third objective is to be able to speak in person with the President of the Republic, Gabriel Boric, to urge him to promote a bill to Congress that allows improving the coverage of rare diseases in the country, and medical assistance in rural areas, abandoned by the state in a country where the privatization of health care prevails.

Neira joined the walk because he was moved by Tomás’ suffering but also because he is worried that “in Chile we do not have the means, a clinic where we can have these medicines, that we have to go to this.”

Tomás was diagnosed in March 2023 with Duchenne’s syndrome, the most common but also most severe form of this type of muscular dystrophy that is triggered by a defective gene that affects dystrophin, a protein that helps keep the body’s cells intact.

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It causes problems when walking and running, fatigue, learning difficulties and heart and respiratory deficiencies, and those who suffer from it usually have a life expectancy of between 20 or 30 years in difficult conditions.

With more than 700 kilometers of love in her terrified legs, this mother hopes to arrive in the Chilean capital at the end of this month of May from Chiloe, where there is a movement so that the spending on a bridge that they believe is unnecessary, is dedicated to the construction of a perentory hospital

International

ICE to remain at airports amid DHS shutdown, Homan says

The U.S. “border czar,” Tom Homan, said Sunday that agents from U.S. Immigration and Customs Enforcement (ICE) will remain deployed at airports until operations return to “100% normal,” as the shutdown of the Department of Homeland Security (DHS) continues.

“We will maintain ICE presence until airports feel they are fully back to normal operations,” Homan said during an interview on Face the Nation on CBS.

Homan justified the deployment on security grounds, noting that the measure was ordered by President Donald Trumpamid widespread absenteeism among agents of the Transportation Security Administration, who have gone without pay for over six weeks due to the DHS shutdown.

According to acting TSA administrator Ha Nguyen McNeill, at least 460 TSA agents have resigned during the shutdown, while daily absenteeism has averaged 11%, exceeding 50% at some airports.

Homan warned that if TSA staffing levels do not recover after the shutdown, ICE agents will continue filling the gap. “ICE is there to support our TSA brothers and sisters. We will remain as long as needed to ensure airport security,” he said.

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The DHS shutdown reached 44 days on Sunday, making it the longest government shutdown in U.S. history. The impasse stems from disagreements between Democrats and Republicans over ICE funding.

A recent bipartisan Senate proposal to fund DHS without including ICE failed after being blocked by House Republicans, who insist on full funding for the agency.

Amid the deadlock, Trump signed an executive order directing Homeland Security Secretary Markwayne Mullin to immediately pay TSA agents to address what he called an “emergency situation” and restore order at airports, with payments expected to begin Monday.

International

Oil prices surge again as Middle East tensions persist

Oil prices climbed again on Friday for a second consecutive session, as markets remained concerned about a prolonged conflict in the Middle East with no tangible diplomatic progress.

North Sea Brent crude for May delivery rose 4.22% to close at $112.57 per barrel.

Meanwhile, U.S. West Texas Intermediate (WTI) approached the $100 mark, settling at $99.64, up 5.46%.

The decision by U.S. President Donald Trump to delay by ten days his ultimatum for the reopening of the Strait of Hormuz failed to reassure market participants.

“It means there will be ten additional days of disruptions in the Middle East for crude and refined product flows,” said Andy Lipow, of Lipow Oil Associates.

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“For prices to come down, a resolution to the conflict is necessary,” Lipow added. “And even in the event of a ceasefire, it is not certain that Iran would allow oil shipments to pass through the Strait of Hormuz.”

International

Young Spanish Woman Receives Euthanasia After Legal Battle, Sparking Debate

A 25-year-old Spanish woman, Noelia Castillo, received euthanasia on Thursday following a prolonged legal dispute with her father.

She passed away at a care center in Sant Pere de Ribes, about 40 kilometers from Barcelona, where she had been living for some time, according to Spanish media reports.

In an interview broadcast a day earlier on Antena 3, Castillo expressed her exhaustion after enduring prolonged suffering. She indicated that her decision was influenced by a combination of personal circumstances and health-related challenges, including family conflicts and a condition of paraplegia following a previous incident that left her with lasting physical consequences.

Spain legalized euthanasia in 2021, becoming one of the few countries that allow patients under strict conditions to seek medical assistance to end their lives in order to avoid what the law defines as unbearable suffering.

The case has reignited debate in Spain over the ethical, legal, and family dimensions surrounding euthanasia, as well as the broader issue of support for individuals in vulnerable situations.