International

Chilean mother travels 1,300 kilometers on foot to try to save her son with dystrophy

In the city of Ancud, one of the most important of the Chiloe archipelago, in the south of Chile, there is no hospital, so if one of its about 165,000 inhabitants gets sick, he must take the ferry and travel about 50 kilometers to reach the neighboring city of Puerto Montt, the nearest place.

Camila Gómez, a young mother, decided to take a trip but this time to walk to the Palacio de la Moneda, in Santiago de Chile, more than 1,300 kilometers from her home, to raise funds and make visible the drama of her son Tomás, who suffers from Duchenne muscular dystrophy, one of the so-called “rare diseases”, which almost no one worries and no one finances.

Its main objective is to help collect the nearly four million dollars that costs a vital treatment that does not exist in Chile – it must be imported from the United States – and that would help stop the progression of the child’s ailment, barely five years old.

“Tomás has Duchenne muscular dystrophy in a neuromuscular degenerative disease that gradually weakens the muscles, the respiratory system and the heart, which leads to premature death,” he explains in one of the highs of his journey.

“In Chile there is no type of treatment for this disease, but in the United States there are several treatment options, there are three and here they told me that it was not possible to cover a medicine that is abroad. And it motivated me to do this walk, this physical effort,” he adds.

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Gómez regrets that no one, neither the precarious public service nor the greedy private insurance, has offered him an exit in the country, although his son “does have options abroad.

“That’s why we decided to walk, to make the disease visible and take it very particularly to collect the 3.9 million dollars that the drug that is administered for the only time in a lifetime costs. So far (its administration) is approved until the age of four and five. Tomás is five and a half years old. So we are against time,” she urges in anguish.

Even so, hope has not been erased from his face and sometimes, especially when asked about solidarity, he outlines a smile of love and trust.

“We are all aware of the great health deficit, that Chile is a country very backward in health, unlike other more developed countries and we are all aware of that. So people have empathized, supported and contributed to the campaign,” he says.

Along with this mother, who left Ancud on April 28, her husband and father of Tomás, Alex Ross, a friend Álvaro Neira and Marco Reyes, president of the Duchenne Families corporation in Chile, who has two teenage children with the same disease and who proposed the Ross Gómez family to the odyssey.

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“I am the logistical support for Camila and Marco who have been walking from Chiloé. I assist them on the way, usually with a change of clothes, food, food, I manage the lodging,” explains Alex.

“(Camila) Walk through Tomás, because we are against time, but he also does it so that no mom has to do it,” he says.

Camila’s third objective is to be able to speak in person with the President of the Republic, Gabriel Boric, to urge him to promote a bill to Congress that allows improving the coverage of rare diseases in the country, and medical assistance in rural areas, abandoned by the state in a country where the privatization of health care prevails.

Neira joined the walk because he was moved by Tomás’ suffering but also because he is worried that “in Chile we do not have the means, a clinic where we can have these medicines, that we have to go to this.”

Tomás was diagnosed in March 2023 with Duchenne’s syndrome, the most common but also most severe form of this type of muscular dystrophy that is triggered by a defective gene that affects dystrophin, a protein that helps keep the body’s cells intact.

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It causes problems when walking and running, fatigue, learning difficulties and heart and respiratory deficiencies, and those who suffer from it usually have a life expectancy of between 20 or 30 years in difficult conditions.

With more than 700 kilometers of love in her terrified legs, this mother hopes to arrive in the Chilean capital at the end of this month of May from Chiloe, where there is a movement so that the spending on a bridge that they believe is unnecessary, is dedicated to the construction of a perentory hospital

International

MEPs Approve Plan That Could Fast-Track Rejection of Some Asylum Claims

With an overwhelming majority of 408 votes in favor, the European Parliament backed the creation of a list of safe countries of origin for asylum seekers.

People coming from Colombia, Egypt, India, Bangladesh, Kosovo, Morocco and Tunisia who apply for asylum in the European Union could see their requests rejected on the grounds that the bloc’s 27 member states consider those nations safe. Applicants would have to prove their individual circumstances, showing evidence of persecution or specific risks if they were to return.

At the same time, while their applications are processed or their return is arranged, migrants could be transferred to third countries outside the EU if the bloc has an agreement with them, if the individuals previously transited through those nations, or if they have family or cultural ties there. The measure provides legal cover for the creation of processing centers beyond EU territory, similar to an initiative previously pursued by Italian Prime Minister Giorgia Meloni in Albania.

Tuesday’s vote reflects the tightening of European migration policy in recent years, despite asylum applications having fallen by more than 20% last year and the issue not ranking among citizens’ top concerns, according to recent surveys.

International

Chile Unveils Latam-GPT to Give Latin America Its Own AI Model

Chile on Tuesday launched Latam-GPT, an initiative aimed at providing Latin America with its own artificial intelligence model in a field largely dominated by U.S. companies, while seeking to reduce biases identified in existing systems.

The project is led by Chile’s National Center for Artificial Intelligence (CENIA), a private corporation funded with public resources.

Latam-GPT is backed by universities, foundations, libraries, government agencies and civil society organizations from across the region, including Chile, Uruguay, Brazil, Colombia, Mexico, Peru, Ecuador and Argentina.

“Thanks to Latam-GPT we are positioning the region as an active and sovereign player in the economy of the future. We are at the table — we are not on the menu,” President Gabriel Boric said during the presentation of the initiative on national broadcaster Televisión Nacional.

The tool aims to break down prejudices and prevent Latin America from being portrayed as a single, uniform reality, Chile’s science minister, Aldo Valle, told AFP.

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The region, he added, “cannot be merely a user or passive recipient of artificial intelligence systems. That could result in losing a significant part of our traditions.”

Despite its name, the initiative is not an interactive chatbot. Instead, it is a large regional database trained on Latin American information that can be used to develop technological applications, the minister explained.

International

Mexico Rises Slightly to 141st in Global Corruption Perceptions Index 2025

Mexico improved by one point in its rating and climbed to 141st place in the 2025 Corruption Perceptions Index (CPI) published Tuesday by the anti-corruption organization Transparency International, which gave the country a score of 27 out of 100.

The slight increase in score comes after Mexico recorded its lowest CPI result in history in 2024 during the final year of former President Andrés Manuel López Obrador’s term, also scoring 27 out of 100. The CPI is widely regarded as the main global measure of perceived public-sector corruption, where 0 represents high corruption and 100 denotes very low corruption.

Within the region, Mexico ranks above only Guatemala (26), Paraguay (24), Honduras (22), Haiti (16), Nicaragua (14) and Venezuela (10), but trails key economic peers such as Brazil (35) and Chile (63).

Among the 38 member countries of the Organisation for Economic Co-operation and Development (OECD), Mexico ranks last. In the G20 grouping, it sits in the penultimate position, ahead of only Russia. Experts say Mexico’s persistently low score reflects ongoing challenges in curbing corruption and protecting public funds.

Transparency International’s report also highlights structural corruption issues that have allowed organized crime to infiltrate politics and weaken governance, as well as risks to journalists covering corruption.