International
Chilean mother travels 1,300 kilometers on foot to try to save her son with dystrophy
In the city of Ancud, one of the most important of the Chiloe archipelago, in the south of Chile, there is no hospital, so if one of its about 165,000 inhabitants gets sick, he must take the ferry and travel about 50 kilometers to reach the neighboring city of Puerto Montt, the nearest place.
Camila Gómez, a young mother, decided to take a trip but this time to walk to the Palacio de la Moneda, in Santiago de Chile, more than 1,300 kilometers from her home, to raise funds and make visible the drama of her son Tomás, who suffers from Duchenne muscular dystrophy, one of the so-called “rare diseases”, which almost no one worries and no one finances.
Its main objective is to help collect the nearly four million dollars that costs a vital treatment that does not exist in Chile – it must be imported from the United States – and that would help stop the progression of the child’s ailment, barely five years old.
“Tomás has Duchenne muscular dystrophy in a neuromuscular degenerative disease that gradually weakens the muscles, the respiratory system and the heart, which leads to premature death,” he explains in one of the highs of his journey.
“In Chile there is no type of treatment for this disease, but in the United States there are several treatment options, there are three and here they told me that it was not possible to cover a medicine that is abroad. And it motivated me to do this walk, this physical effort,” he adds.
Gómez regrets that no one, neither the precarious public service nor the greedy private insurance, has offered him an exit in the country, although his son “does have options abroad.
“That’s why we decided to walk, to make the disease visible and take it very particularly to collect the 3.9 million dollars that the drug that is administered for the only time in a lifetime costs. So far (its administration) is approved until the age of four and five. Tomás is five and a half years old. So we are against time,” she urges in anguish.
Even so, hope has not been erased from his face and sometimes, especially when asked about solidarity, he outlines a smile of love and trust.
“We are all aware of the great health deficit, that Chile is a country very backward in health, unlike other more developed countries and we are all aware of that. So people have empathized, supported and contributed to the campaign,” he says.
Along with this mother, who left Ancud on April 28, her husband and father of Tomás, Alex Ross, a friend Álvaro Neira and Marco Reyes, president of the Duchenne Families corporation in Chile, who has two teenage children with the same disease and who proposed the Ross Gómez family to the odyssey.
“I am the logistical support for Camila and Marco who have been walking from Chiloé. I assist them on the way, usually with a change of clothes, food, food, I manage the lodging,” explains Alex.
“(Camila) Walk through Tomás, because we are against time, but he also does it so that no mom has to do it,” he says.
Camila’s third objective is to be able to speak in person with the President of the Republic, Gabriel Boric, to urge him to promote a bill to Congress that allows improving the coverage of rare diseases in the country, and medical assistance in rural areas, abandoned by the state in a country where the privatization of health care prevails.
Neira joined the walk because he was moved by Tomás’ suffering but also because he is worried that “in Chile we do not have the means, a clinic where we can have these medicines, that we have to go to this.”
Tomás was diagnosed in March 2023 with Duchenne’s syndrome, the most common but also most severe form of this type of muscular dystrophy that is triggered by a defective gene that affects dystrophin, a protein that helps keep the body’s cells intact.
It causes problems when walking and running, fatigue, learning difficulties and heart and respiratory deficiencies, and those who suffer from it usually have a life expectancy of between 20 or 30 years in difficult conditions.
With more than 700 kilometers of love in her terrified legs, this mother hopes to arrive in the Chilean capital at the end of this month of May from Chiloe, where there is a movement so that the spending on a bridge that they believe is unnecessary, is dedicated to the construction of a perentory hospital
International
China shows at the UN its “condemnation” of Israel for the “violation of Iran’s sovereignty”
The Chinese ambassador to the United Nations, Fu Cong, showed the “condemnation” of his country against the “violation of the sovereignty, security and territorial integrity of Iran” after the air attack launched by Israel against multiple targets in that country, the official newspaper Diario del Pueblo reports this Saturday.
That media echoes Fu’s speech to the UN Security Council on Friday, in which he demanded that Israel “immediately stop all its military actions.”
“China (…) opposes the expansion of conflicts, and is deeply concerned about the serious consequences that may arise from Israel’s actions. The intensification of regional tensions does not interest any of the parties involved,” said the Chinese emissary.
Beijing called on Tel Aviv and Tehran to “resolve their disputes through political and diplomatic means, and maintain peace and stability at the regional level jointly.”
In Fu’s view, the Israeli attack will have a “negative impact” on the negotiations on Iran’s nuclear program: “China has always been committed to the peaceful resolution of the Iranian nuclear issue through dialogue and consultations, and opposes the use of force, illegal unilateral sanctions and armed attacks on peaceful nuclear facilities.”
This Friday, China had already expressed its willingness to “play a constructive role” to curb the escalation of tensions and facilitate conciliation, in line with its traditional position of active neutrality in the region’s conflicts.
The Israeli attack, which according to Tehran caused dozens of deaths, including senior military commanders and at least six nuclear scientists, targeted key facilities such as the uranium enrichment plant in Natanz. Numerous civilian casualties were also reported.
Israel justified the offensive by claiming that the Iranian regime is secretly developing a program to manufacture nuclear weapons.
For his part, Iran’s supreme leader, Ali Khamenei, promised a “severe response” and assured that the attack would reveal the “evil nature” of Israel.
UN Secretary-General António Guterres also expressed concern about the bombing, at a time when Iran and the US The United States is holding talks about the Iranian nuclear program.
International
Donald Trump’s government pauses its program of indiscriminate raides against migrants
The government of US President Donald Trump has decided to pause its campaign of discretionary roundings against migrants in certain areas due to its apparent concern about the growing unpopularity of these methods, according to The New York Times newspaper on Friday.
According to an email to which the newspaper has had access and the confirmation of US officials, the Executive has ordered the Immigration and Customs Control Service (ICE) to pause the beatings that affect the agricultural industry and the hospitality industry.
The spokeswoman for the Department of Homeland Security, Tricia McLaughlin, confirmed in a statement that “the president’s instructions” will be obeyed and the portfolio will also continue to “work to get the worst illegal foreign criminals out of the streets of the United States.”
The decision points out that this campaign of discretionary arrests to try to deport large-scale immigrants is harming industries and electoral constituencies whose support Trump wants to retain for next year’s legislative elections.
The new instructions were transmitted to ICE in an email sent last Thursday asking that “all investigations/law enforcement operations be suspended in work centers in the agricultural sector (including aquaculture and meat packing plants), restaurants and hotels.”
These new guidelines come in turn after more than a week of intense protests in Los Angeles against this immigration policy and that Trump himself admitted that the raids seem to be affecting the agricultural sector, which in states like California, where beatings have intensified, depend almost exclusively on immigrant labor.
Since his return to the White House in January, Trump has implemented an aggressive policy of hard hand against immigration and as a sample of his Cabinet officials recently held a meeting with the ICE leadership to order them to carry out 3,000 arrests a day, a mandate that seems to be behind the intensification of the raids.
International
Trump says he knew “everything” about the attack on Iran and assures that the dialogue remains open
US President Donald Trump said on Friday that Washington “known everything” about the Israeli attack on Iran and that the dialogue on Tehran’s nuclear program “is not dead.”
“We knew everything and I tried to avoid Iran all this humiliation and death. I tried hard to avoid it because I would have loved to see an agreement,” Trump said in an interview with Reuters.
The US president insisted on what he wrote today about the attack on social networks, where he said he gave an ultimatum of 60 days to Tehran to reach an agreement.
“We knew practically everything. We knew enough to give Iran 60 days to reach an agreement and today it is already 61 days,” he explained in the interview, in which he said he did not know what the current situation of the Iranian nuclear program is after the attack launched by Israel, which also ended the lives of key military leaders of the Persian country.
Regarding the dialogue between the US and Iran about the nuclear program of the ayatollahs, Trump assured that “he is not dead”, that “an agreement is still possible” and also recalled that on Sunday a sixth round of dialogue is scheduled in Muscat (Oman) that they consider is now in the air.
“We have a meeting with them on Sunday. Now, I’m not sure if that meeting will take place, but we have a meeting with them on Sunday,” he said.
The United States and Iran have held five rounds of talks on the Iranian nuclear program since April, with Washington demanding that Tehran discard its capabilities both to manufacture an atomic bomb and to enrich uranium, something that the ayatollahs considered unacceptable.
Both Israel and Trump himself had warned of possible preventive attacks on the Persian country due to this refusal by Iran.
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