International
The mother who decided to walk 1,300 kilometers in Chile to get an expensive medicine and save her son from a serious illness
Walking the more than 1,300 kilometers that separate the commune of Ancud in Chiloé from the Palacio de la Moneda in Santiago in Chile may seem like a chimera to many.
Not so for the Chilean Camila Gómez, a mother who completes this challenge with the goal of raising 3.5 billion pesos (US$3.7 million) to buy a vital medicine for her five-year-old son and make visible the cause of patients with rare diseases in Chile.
Time is pressing. His son, Tomás Ross, suffers from Duchenne muscular dystrophy, a severe ailment that worsens quickly. If you do not receive the drug as soon as possible, it will be difficult to stop the disease.
“It is a very expensive medicine and a disease that in Chile has no opportunities, but there are opportunities abroad,” Gómez tells BBC Mundo.
Thousands of Chileans turned to Gómez’s case, whose determination went viral in the country.
The mother left Ancud on April 28 with Marcos Reyes, president of the Duchenne Families corporation in Chile, who also has two teenage children with the disease.
It was precisely Reyes who suggested the idea of the walk to Gómez.
“We walk for all the children and families who suffer from the disease. Time is running out,” Gómez said in an interview with the 24-hour national news.
The goal, in addition to raising funds and making their causes visible, is to get Chilean President Gabriel Boric to “bring a bill to Congress” that allows to improve the coverage of rare diseases in the country, as Reyes explains to BBC Mundo.
“He was born healthy, without any problem or complication, until at the age of four we realized that he had difficulty climbing stairs and performing some types of physical activity,” Gómez said on social networks.
“Until that moment there was no cure, but for a few months we have had a hope; in the United States the first drug was approved whose objective is to stop the progression of the disease,” Gómez continued.
This drug is marketed as elevidys and is administered intravenously in patients who, like Ross, are between four and five years old.
There are several types of muscular dystrophy, although Duchenne is the most common form and also one of the most severe.
The disease is unleashed due to a defective gene that results in the absence of dystrophin, a protein that helps keep the body’s cells intact.
Patients can develop problems when walking and running, fatigue, learning difficulties and cardiac and respiratory deficiencies due to the weakening of vital muscles in these functions.
The British national health services indicate that it normally affects young children and that people with this ailment usually live until they are 20 or 30 years old.
Gómez talks to BBC Mundo this Sunday, May 12, in “a little pause, while eating a little.”
It has already been more than two weeks of a journey that has about half left.
At the time of speaking, he is at the Púa toll booth, in the Araucanía Region, still more than 600 kilometers from the capital.
“This journey is crazy, but we think it’s turning out more than imagined,” says Gómez.
The first week was hard, but the mother says that with the passing of the days everything is getting easier.
“It’s impressive how the body adapts to the rhythm and it’s not so terrible anymore,” he says.
He is also helped by the emotional impulse he received by surprise last Friday, May 10 on the occasion of Mother’s Day.
Her son Tomás found her in the city of Temuco, accompanied by her father Alex Ross, to give her a hug, a bouquet of flowers and a recharge of encouragement.
“The boy knows that his mother gathers talks to find him a remedy, but he was only there for a while and turned to Chiloé. Because of the disease he has, he shouldn’t be cold,” Alex Ross tells BBC Mundo.
By May 10, the family had managed to raise more than half of the funds.
Gómez documents his tour on his social media accounts, where he receives thousands of messages of support, hundreds of thousands of views in his videos, the attention of the press and the company of other walkers who join in some sections of his tour.
“This has grown so much that I must help with the whole logistical issue: I look for accommodation, food, I assist them on the route with dry clothes, I look for podiatrists, kinesiologists and medicines,” says Alex Ross.
Camila Gómez and Marcos Reyes expect to arrive in La Moneda at the end of May, depending on the weather conditions.
A long way to make its causes visible that goes beyond the more than 1,300 kilometers that they will have traveled at the end of their journey.
International
King Charles III Says U.S.-UK Alliance Is “Irreplaceable and Unbreakable”
King Charles III of the United Kingdom reaffirmed the strength of the British-American relationship on Tuesday during a speech before the United States Congress, describing the alliance between the two nations as “irreplaceable and unbreakable.”
The address, delivered at the Capitol, marked the first speech by a British monarch before Congress since Queen Elizabeth II in 1991 and comes at a time of political tensions between Donald Trump’s administration and the Labour government of Prime Minister Keir Starmer.
“As President Trump himself observed during his state visit to Britain last autumn, the bond of kinship and identity between the United States and the United Kingdom is invaluable and eternal. It is irreplaceable and unbreakable,” the king said.
While reflecting on the upcoming 250th anniversary of U.S. independence, which will be commemorated this year, Charles III stated that the partnership between the two countries “was born out of disagreement, but is no less strong because of it.”
The monarch emphasized the democratic values shared by both nations and noted that major global changes have occurred whenever the two allies found common ground.
“When we have found that way to agree, great changes have taken place not only for the benefit of our peoples, but for all peoples,” he said.
King Charles also quoted British Prime Minister Keir Starmer, who recently described the relationship as “an indispensable alliance.”
Concluding his speech, the monarch described the shared history of the United States and the United Kingdom as “a story of reconciliation, renewal, and an extraordinary partnership.”
He added that Washington and London have forged “one of the most consequential alliances in human history.”
“I pray with all my heart that our alliance continues to defend our shared values, together with our partners in Europe, the Commonwealth, and around the world, and that we ignore calls urging us to become increasingly isolationist,” Charles III stated.
The king ended by urging both nations to “recommit to one another in selfless service to our peoples and to all peoples of the world.”
International
Trump Administration Considers Denying Green Cards Over Political Views
The administration of President Donald Trump is evaluating new immigration guidelines that could deny permanent residency to immigrants based on their political views, according to a report published by The New York Times.
The proposed measures, outlined in internal Department of Homeland Security documents, would instruct immigration officials to take applicants’ public expressions and ideological positions into account when reviewing green card applications.
According to the report, cases involving “possible anti-American and/or antisemitic conduct or ideologies” would need to be referred to higher authorities for additional review.
Even if applicants have not violated any laws, authorities could still reject residency requests if they determine that individuals have “endorsed, promoted, or supported anti-American views.”
Among the factors listed in the guidelines are participation in pro-Palestinian activities, actions considered antisemitic, and the burning of the U.S. flag.
The documents reportedly describe such actions as “heavily negative” factors in immigration evaluations, potentially blocking applicants from obtaining permanent residency and, eventually, U.S. citizenship.
The directives also place particular attention on demonstrations held on university campuses following the 2023 Hamas attacks against Israel.
However, flag burning has previously been recognized by the U.S. Supreme Court as a form of protected free speech under the Constitution.
The proposal has sparked criticism from immigrant advocacy organizations, including the New York Immigration Coalition.
Its president, Murad Awawdeh, warned that the policies could pose a threat to fundamental rights and freedoms.
International
Mexico Arrests CJNG Leader “El Jardinero” in Nayarit
Mexican authorities arrested Audias Flores, known as “El Jardinero,” on Monday during a naval operation in the western state of Nayarit, delivering another major blow to the Cártel Jalisco Nueva Generación (CJNG).
Flores was considered one of the top regional leaders within the cartel and had reportedly overseen criminal operations along Mexico’s Pacific coast. Security analysts viewed him as a potential successor to slain drug kingpin Nemesio Oseguera.
The arrest was carried out by Mexico’s Navy Special Forces in a planned operation, according to Security Minister Omar García Harfuch.
The United States Department of the Treasury had previously identified Flores as a “significant foreign narcotics trafficker,” while U.S. authorities offered a reward of up to $5 million for information leading to his capture and extradition.
A U.S. grand jury indicted Flores in 2021 on charges including conspiracy to distribute cocaine and heroin.
His capture comes months after the reported death of “El Mencho,” an operation that Mexican authorities considered a priority due to the cartel leader’s alleged involvement in a 2020 assassination attempt against García Harfuch.
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