International
The mother who decided to walk 1,300 kilometers in Chile to get an expensive medicine and save her son from a serious illness
Walking the more than 1,300 kilometers that separate the commune of Ancud in Chiloé from the Palacio de la Moneda in Santiago in Chile may seem like a chimera to many.
Not so for the Chilean Camila Gómez, a mother who completes this challenge with the goal of raising 3.5 billion pesos (US$3.7 million) to buy a vital medicine for her five-year-old son and make visible the cause of patients with rare diseases in Chile.
Time is pressing. His son, Tomás Ross, suffers from Duchenne muscular dystrophy, a severe ailment that worsens quickly. If you do not receive the drug as soon as possible, it will be difficult to stop the disease.
“It is a very expensive medicine and a disease that in Chile has no opportunities, but there are opportunities abroad,” Gómez tells BBC Mundo.
Thousands of Chileans turned to Gómez’s case, whose determination went viral in the country.
The mother left Ancud on April 28 with Marcos Reyes, president of the Duchenne Families corporation in Chile, who also has two teenage children with the disease.
It was precisely Reyes who suggested the idea of the walk to Gómez.
“We walk for all the children and families who suffer from the disease. Time is running out,” Gómez said in an interview with the 24-hour national news.
The goal, in addition to raising funds and making their causes visible, is to get Chilean President Gabriel Boric to “bring a bill to Congress” that allows to improve the coverage of rare diseases in the country, as Reyes explains to BBC Mundo.
“He was born healthy, without any problem or complication, until at the age of four we realized that he had difficulty climbing stairs and performing some types of physical activity,” Gómez said on social networks.
“Until that moment there was no cure, but for a few months we have had a hope; in the United States the first drug was approved whose objective is to stop the progression of the disease,” Gómez continued.
This drug is marketed as elevidys and is administered intravenously in patients who, like Ross, are between four and five years old.
There are several types of muscular dystrophy, although Duchenne is the most common form and also one of the most severe.
The disease is unleashed due to a defective gene that results in the absence of dystrophin, a protein that helps keep the body’s cells intact.
Patients can develop problems when walking and running, fatigue, learning difficulties and cardiac and respiratory deficiencies due to the weakening of vital muscles in these functions.
The British national health services indicate that it normally affects young children and that people with this ailment usually live until they are 20 or 30 years old.
Gómez talks to BBC Mundo this Sunday, May 12, in “a little pause, while eating a little.”
It has already been more than two weeks of a journey that has about half left.
At the time of speaking, he is at the Púa toll booth, in the Araucanía Region, still more than 600 kilometers from the capital.
“This journey is crazy, but we think it’s turning out more than imagined,” says Gómez.
The first week was hard, but the mother says that with the passing of the days everything is getting easier.
“It’s impressive how the body adapts to the rhythm and it’s not so terrible anymore,” he says.
He is also helped by the emotional impulse he received by surprise last Friday, May 10 on the occasion of Mother’s Day.
Her son Tomás found her in the city of Temuco, accompanied by her father Alex Ross, to give her a hug, a bouquet of flowers and a recharge of encouragement.
“The boy knows that his mother gathers talks to find him a remedy, but he was only there for a while and turned to Chiloé. Because of the disease he has, he shouldn’t be cold,” Alex Ross tells BBC Mundo.
By May 10, the family had managed to raise more than half of the funds.
Gómez documents his tour on his social media accounts, where he receives thousands of messages of support, hundreds of thousands of views in his videos, the attention of the press and the company of other walkers who join in some sections of his tour.
“This has grown so much that I must help with the whole logistical issue: I look for accommodation, food, I assist them on the route with dry clothes, I look for podiatrists, kinesiologists and medicines,” says Alex Ross.
Camila Gómez and Marcos Reyes expect to arrive in La Moneda at the end of May, depending on the weather conditions.
A long way to make its causes visible that goes beyond the more than 1,300 kilometers that they will have traveled at the end of their journey.
International
Authorities capture CJNG financial chief in international airport operation
A man identified as the main financial operator of the powerful Jalisco New Generation Cartel (CJNG) was arrested Thursday at Mexico City’s international airport, authorities reported.
The individual, named by Mexican media as Óscar Antonio Álvarez, was apprehended during an operation involving the army, navy, National Guard, police, and the attorney general’s office, according to a joint statement.
Álvarez is considered the primary financial operator of a criminal group originating in Jalisco, and the capture took place at Benito Juárez Airport as he arrived on a flight from Barcelona, Spain.
Authorities stated that Álvarez faces charges of organized crime and money laundering, specifically for receiving and transferring illicit funds. His work with the CJNG reportedly included purchasing properties and managing businesses in the tequila and livestock sectors.
According to El Universal, Álvarez was directly under the command of Rubén Oseguera Cervantes, “El Mencho”, the cartel’s top leader, for whom the U.S. offers a $15 million reward.
The CJNG, which operates throughout Mexico and in various parts of the world, was designated earlier this year as a “foreign terrorist organization” by the U.S. government.
Álvarez was handed over to the federal public prosecutor to determine his legal situation, the report added.
International
Jair Bolsonaro sentenced for leading armed criminal plot after 2022 election loss
Former Brazilian President Jair Bolsonaro, 70, has been sentenced for leading an armed criminal organization that attempted to cling to power after losing the 2022 elections to President Luiz Inácio Lula da Silva.
The alleged coup plot, which reportedly included a plan to assassinate Lula, was not carried out due to lack of support from the military leadership.
By a four-to-one vote of the judges overseeing the case, seven co-defendants, including former ministers and military chiefs, were also convicted.
“A criminal armed organization was formed by the defendants, who must be sentenced based on the factual circumstances I consider proven,” said the final judge to cast a vote, Cristiano Zanin.
Bolsonaro, who has been under house arrest since August, did not attend the court hearings, citing health issues.
Reacting on X, Senator Flavio Bolsonaro, the former president’s son, said: “They call this a trial a process whose outcome everyone already knew before it began.”
One of the first international reactions came from the White House. Former U.S. President Donald Trump called the sentence “very surprising,” while Senator Marco Rubio, U.S. Secretary of State, stated that the United States will “respond accordingly” to the “unjust” ruling.
International
Poland invokes NATO Article 4 after russian drone incursion
The violation of Polish airspace by Russian drones on Wednesday triggered the most serious clash between Russia and NATO since the start of the war in Ukraine, prompting Poland to invoke Article 4 of the NATO Treaty, which calls for consultations among allies.
Polish Prime Minister Donald Tusk addressed Parliament on Wednesday, describing an unprecedented “aggression” in which at least 19 Russian drones breached Polish airspace, creating a situation that the Prime Minister described as “the closest to an open conflict since World War II.”
Speaking at the start of an extraordinary Council of Ministers session, Tusk stated that “this is the first time Russian drones have been shot down over the territory of a NATO member state, and that is why all our allies are taking the situation very seriously.”
Although he affirmed that “there is no reason to claim that we are in a state of war,” he labeled the incidents as “a large-scale provocation” and ordered the invocation of NATO’s Article 4 to call for consultations with allied nations.
Tusk also noted on X (formerly Twitter) that he had received “not only expressions of solidarity with Poland but, above all, concrete proposals to support the country’s air defense” during discussions with European leaders throughout the day.
The Polish leader specifically mentioned conversations with the leaders of the United Kingdom, Italy, Germany, and the Netherlands—Keir Starmer, Giorgia Meloni, Friedrich Merz, and Dick Schoof—along with French President Emmanuel Macron, Ukrainian President Volodymyr Zelensky, and NATO Secretary-General Jens Stoltenberg.
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