International
The mother who decided to walk 1,300 kilometers in Chile to get an expensive medicine and save her son from a serious illness
Walking the more than 1,300 kilometers that separate the commune of Ancud in Chiloé from the Palacio de la Moneda in Santiago in Chile may seem like a chimera to many.
Not so for the Chilean Camila Gómez, a mother who completes this challenge with the goal of raising 3.5 billion pesos (US$3.7 million) to buy a vital medicine for her five-year-old son and make visible the cause of patients with rare diseases in Chile.
Time is pressing. His son, Tomás Ross, suffers from Duchenne muscular dystrophy, a severe ailment that worsens quickly. If you do not receive the drug as soon as possible, it will be difficult to stop the disease.
“It is a very expensive medicine and a disease that in Chile has no opportunities, but there are opportunities abroad,” Gómez tells BBC Mundo.
Thousands of Chileans turned to Gómez’s case, whose determination went viral in the country.
The mother left Ancud on April 28 with Marcos Reyes, president of the Duchenne Families corporation in Chile, who also has two teenage children with the disease.
It was precisely Reyes who suggested the idea of the walk to Gómez.
“We walk for all the children and families who suffer from the disease. Time is running out,” Gómez said in an interview with the 24-hour national news.
The goal, in addition to raising funds and making their causes visible, is to get Chilean President Gabriel Boric to “bring a bill to Congress” that allows to improve the coverage of rare diseases in the country, as Reyes explains to BBC Mundo.
“He was born healthy, without any problem or complication, until at the age of four we realized that he had difficulty climbing stairs and performing some types of physical activity,” Gómez said on social networks.
“Until that moment there was no cure, but for a few months we have had a hope; in the United States the first drug was approved whose objective is to stop the progression of the disease,” Gómez continued.
This drug is marketed as elevidys and is administered intravenously in patients who, like Ross, are between four and five years old.
There are several types of muscular dystrophy, although Duchenne is the most common form and also one of the most severe.
The disease is unleashed due to a defective gene that results in the absence of dystrophin, a protein that helps keep the body’s cells intact.
Patients can develop problems when walking and running, fatigue, learning difficulties and cardiac and respiratory deficiencies due to the weakening of vital muscles in these functions.
The British national health services indicate that it normally affects young children and that people with this ailment usually live until they are 20 or 30 years old.
Gómez talks to BBC Mundo this Sunday, May 12, in “a little pause, while eating a little.”
It has already been more than two weeks of a journey that has about half left.
At the time of speaking, he is at the Púa toll booth, in the Araucanía Region, still more than 600 kilometers from the capital.
“This journey is crazy, but we think it’s turning out more than imagined,” says Gómez.
The first week was hard, but the mother says that with the passing of the days everything is getting easier.
“It’s impressive how the body adapts to the rhythm and it’s not so terrible anymore,” he says.
He is also helped by the emotional impulse he received by surprise last Friday, May 10 on the occasion of Mother’s Day.
Her son Tomás found her in the city of Temuco, accompanied by her father Alex Ross, to give her a hug, a bouquet of flowers and a recharge of encouragement.
“The boy knows that his mother gathers talks to find him a remedy, but he was only there for a while and turned to Chiloé. Because of the disease he has, he shouldn’t be cold,” Alex Ross tells BBC Mundo.
By May 10, the family had managed to raise more than half of the funds.
Gómez documents his tour on his social media accounts, where he receives thousands of messages of support, hundreds of thousands of views in his videos, the attention of the press and the company of other walkers who join in some sections of his tour.
“This has grown so much that I must help with the whole logistical issue: I look for accommodation, food, I assist them on the route with dry clothes, I look for podiatrists, kinesiologists and medicines,” says Alex Ross.
Camila Gómez and Marcos Reyes expect to arrive in La Moneda at the end of May, depending on the weather conditions.
A long way to make its causes visible that goes beyond the more than 1,300 kilometers that they will have traveled at the end of their journey.
International
Portuguese Authorities Seize 2.6 Tons of Cocaine Worth More Than $550 Million in Drug Bust
Italian financial police reported Monday that Portuguese authorities intercepted a speedboat carrying more than 2.6 tons of cocaine, with an estimated street value exceeding $550 million.
Four people — two Spanish nationals, one Albanian citizen, and a man from Gibraltar — were arrested in connection with the operation, according to Italian authorities.
The vessel was intercepted off the coast of Lisbon by Portugal’s maritime police following an investigation led by Italian authorities.
Italian financial police estimated that the seized shipment had a street value of approximately 500 million euros ($570 million), making it one of the largest drug seizures reported in the region in recent years.
Portuguese authorities said the interception took place on Thursday, about 90 kilometers (50 nautical miles) southwest of Cape Espichel, during an operation targeting international drug trafficking routes.
International
U.S. and Iran Maintain Ceasefire as Trump Expresses Optimism Over New Talks
U.S. President Donald Trump said Monday that there are “good chances” of reaching an agreement with Iran, as both sides maintained a ceasefire for the third consecutive day following weeks of escalating hostilities.
Trump expressed optimism about the possibility of resuming diplomatic negotiations aimed at ending the conflict, which began in late February and has raised international concerns over its impact on global markets and energy supplies.
The fighting has remained suspended since Saturday, after the United States resumed airstrikes against Iran amid a dispute over control of the Strait of Hormuz, a key route for global oil shipments. The renewed military action had previously caused the collapse of an earlier ceasefire agreement.
Asked about the prospects for negotiations aboard Air Force One, Trump said: “I have a lot of patience… We’ll see what happens. I think there are good chances that something could happen.”
The U.S. president also highlighted Washington’s military capabilities, saying: “We have a lot of ammunition,” while adding that he would like to have more resources due to U.S. support for Ukraine.
U.S. Ambassador to the United Nations Mike Waltz said Trump was allowing diplomatic efforts more time, explaining that the president was “giving some space to the talks” while maintaining that Washington remains prepared to take action if necessary.
Meanwhile, tensions continue in other areas of the Middle East. Saudi Arabia reported that it intercepted drones launched from Iraq by groups allied with Tehran and urged the Iraqi government to take measures to prevent further attacks.
International
Police Investigate After Remains of Five Newborns Found in French Apartment
French authorities have opened a murder investigation after the discovery of human remains believed to belong to five newborn babies inside an apartment in the historic center of a city, the local prosecutor’s office reported Monday night.
According to prosecutors, a 32-year-old woman had given birth at home on Sunday to a healthy baby before being taken to a hospital for medical care.
The discovery was made after the woman’s 32-year-old partner began searching the residence after reportedly learning, once again and at a late stage, that she had been pregnant.
During the search, the man found what appeared to be human remains and informed the hospital, which then alerted prosecutors.
A forensic doctor determined that the remains likely belonged to five newborn infants. Authorities have not yet established the circumstances or motive behind the case.
Investigators have not been able to interview the mother, who remains hospitalized following the delivery.
Prosecutors also confirmed that the couple has two other children, aged eight and nine years old. The investigation remains ongoing as authorities work to clarify the events surrounding the discovery.
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